Well, I knew I had Dercum's Disease but about a year later I realized - and also had it confirmed - that I also have lipedema. I have the classic lipedema shape - smaller torso with large butt and thighs, smaller forearms and large upper arms. The pain in my legs has slowly gotten worse. Various things help - compression and dry brushing and massage. They always feel better when I put them up and put light heat on them!
Having two fat disorders is just more confusing. Still no good answers on what to do to slow down progress. There are some good support groups on facebook though. It's awfully nice to have the experience and wisdom of others to follow.
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